Why do you get dementia

The forums of the German Alzheimer's Society form a meeting point for those affected and interested in sharing experiences.

Diagnosis: Alzheimer's - very rapid course -

Member since 06/13/2008

Hello, my father is lying Currently in the hospital and yesterday after CT and lumbar puncture we received the diagnosis: Alzheimer's dementia. When did it start? Last year in June everything was still fine. In July, after a preventive colonoscopy, rapid weight reduction (approx. 10 kg in 3-4 weeks), very tired - then a switch was thrown in August: Since then my father has been very sensitive to smell and taste, very scared and only goes hand-in -Hand with my mom (which he never did) like he needs protection. In August, the first examination by a neurologist, MRI is normal, EEG also normal. Diagnosis: depression. Since then, my father has been losing more and more physically. He is eating normally again, but his posture is becoming more and more stooped, slight tremor, he is just very wobbly on his legs. I have to say that my father was always a very active person, cycling and gardening - a craftsman where nobody could believe that he was 67 years old.
Since January he has been increasingly disoriented (he gives up driving because he doesn't want to endanger anyone), speech disorders since March, increasing difficulty finding words, short-term memory catastrophic. The new neurologist, whom I have great confidence in, sends us to the clinic because he cannot do any further tests on an outpatient basis. He's been in the hospital for two weeks. CT normal, EEG okay. And yesterday came the results of the lumbar puncture: "Your father has rapidly progressing Alzheimer's disease." In addition, he has an inflammation in his body, which must be older, which must now be diagnosed more precisely. Here is my "straw". Maybe not dementia after all .....?
We are so helpless, but everyone concerned probably knows that. What's next? What does "fast course" mean?
Question after question.

Member since October 25, 2006

Hello Silke,
it is difficult to answer your questions. Every course of Alzheimer's disease is different. I can only describe the course of my mother-in-law's illness to you.
In 2005 we noticed that something was wrong with her. It started with little things.
She could no longer separate the garbage and has neglected her household. She has also bought newspapers twice or three times and thrown sausage or fruit with the packaging in public garbage cans (neighbors have pointed this out to us)
In the summer of 2006 she nearly set the kitchen on fire. (The thermos flask was placed on the hot stove top. It then exploded and all the plastic was eaten up on the stove top. Luckily we're at home right now. We then had it examined by the neurologist. (with all the trimmings)
The diagnosis "Alzheimer's". At that time I gave up my job and only looked after my mother-in-law. (I still do it today)
From then on everything went very quickly. You can read here in the forum in many reports what was going on, it was hell for me. From running away, rearranging your apartment, hiding your laundry or smearing your excrement. In early 2007 she became incontinent and had to be swaddled, but was still mobile. In Sep 2007 she got bilateral pneumonia and just made it again. But since then she has been bedridden. All she can do is move her hands, nothing else. I have to clean them up, feed them and give them to drink. She is washed and otherwise very well looked after. But now the circulatory disorders are starting in the legs, and I don't know how everything will go on.
Yes, that was a quick run-through and I hope I didn't scare you with it. But I believe that my mother-in-law also has a "fast course".
Take your time and read the reports here in the forum, then you can get an idea.

Just courage and a lot of strength, write again how things are going for you.
LG Uschi

Member since 06/13/2008

Hello Uschi,

thanks alot for your wishes. Maybe all is not lost yet. My father has to go to university for a special examination. He has an inflammation in his body that he has had for a long time and the cause must now be determined.

After the lumbar puncture and the devastating diagnosis by the senior physician, the chief physician has now told us that a diagnosis cannot yet be made. In any case, the investigation must be awaited. It is entirely possible that this inflammation is in the head, the nevas swollen there. With cortisone "everything will be fine".

How can a senior physician simply say it is dementia, it is just bad news that I can give you and make a "if it goes well another 5 years" diagnosis. Doctors can be so caustic ...

In any case, we have hope again. And if it is dementia, it will be included in a study. So we are currently more positive again.


Member since 03/26/2008

Hello Silke,

my father had very similar symptoms. The weight loss and the speech disorders in particular went on rapidly for him. He was always very athletic (sports teacher) and active, his posture became more and more stooped and he became more and more shaky. After a long search for a diagnosis - he was initially also certified as having depression in old age - we met a very competent doctor at the university clinic who, after extensive examinations, was diagnosed with frontotemporal dementia and an anterior horn disease (a type of muscle disease that causes the body to degrade). Then everything happened very quickly. We received the diagnosis at Easter this year with the information that we would like to take care of a care as soon as possible, and he died on June 1st. I don't want to scare you, according to the doctor, this combination is extremely rare, but many doctors did not even know this front horn disease from which he ultimately died.

I wish that you will soon receive answers and that it may "only" turn out to be inflammation.

LG Svenja

Member since 03/13/2008

My mother, 60 years old, has been diagnosed with Alzheimer's for a year and a half. For 4 weeks it has deteriorated significantly. She only eats pudding, walks disoriented through the village, doesn't know the time, doesn't know what day of the week it is, and can't do the housework Lead more and personal hygiene is zero. She lives with my father who doesn't give a damn about it. My sister lives in the same place with family, is sick herself and cannot look after herself. I live 10 km away with school-age children, fully employed . Now user problem: We have applied for care level, it was rejected! The family doctor puts pressure on us to take care of us. We are desperate! I have no idea which paths we can go. By the way, my parents live from Hartz4. Who can give us tips give, where can we turn?

Member since February 18, 2007

Hello daughter38,

Call your mother's health insurance as soon as possible, I would be the first to do it. You may have your family doctor issue you an emergency letter.

Whatever you can do: Call a local nurse 2 or 3 times a day. Then you first have specialists who 1. are there on site every day and immediately notice when it is extremely "burning" and 2. when you call the health insurance company you can say that you had to order a nursing service, because it is not like that more went and urge urgency !!!

To do this, you can immediately fill out the application for the care level and send it to the health insurance company. You can download and fill it out here:


Write a short covering letter, where you make the urgency clear. You can also include the cover letter from the doctor.

Incidentally, you will receive the care level retrospectively from the day or month on which the application was received by the health insurance fund.

You would have to take the services of the care service in advance and pay in the meantime and then get an additional payment later.
But maybe the nursing service also agrees that you only need to pay when the money is in the account.

Please react immediately, then the "mills for grinding" will come.
Incidentally, when you order a nursing service, you also have competent specialists who can help enforce the needs of the medical service at the on-site appointment.

A lot of patience and good nerves
wishes Christine

Member since 03/13/2008

Thank you for the tips first. I will use them in the next few days. I have vacation next week and will take care of myself. One more question: Do we have to apply for something like powers of attorney or something like that?

Member since 03/13/2008

It's me again, but we have to appeal again because the care level was rejected. How do I do that, are there any forms?

Member since February 18, 2007

Hello daughter38,

Some notes I found:

If the application for a care level has unfortunately been rejected, this decision must be justified in the care decision. In order to be able to understand this decision, you should in any case request the care report from the care insurance fund.

The notification (not the expert opinion) can be objected to in writing within 4 weeks. If there is no information on legal remedies attached to the care certificate, you can even file an objection within one year. During the 4-week period, the objection does not have to be justified, it is sufficient if you formulate your objection in one sentence: (e.g. "I hereby object to the decision of ...") For example, to meet the deadline, you should send the objection by registered letter with acknowledgment of receipt. Oral objection is not enough.

In principle, it is sufficient for you to notify the long-term care insurance fund of your differing opinion. However, it is advisable to justify the contradiction point by point, e.g. the assumed time required in the care report can differ significantly from the actual effort that you have documented in your care diary. Your own descriptions of the care situation are also helpful. You can submit the reason for the objection later.

If an objection is lodged against a care decision, the care insurance fund will first re-examine the report on which the decision is based. If that does not result in a different classification, a second review is usually drawn up by another reviewer. Then either the objections of the objection will be taken into account and you will be granted the level of care, or the objection will be rejected.

In any case, call them and tell them that the condition has deteriorated significantly and that you have been advised by your family doctor what to do.

As for powers of attorney, we were with us years ago. Parents-in-law and 6 years ago now also with my mother had the best experiences with the direct "general power of attorney" via a notary.
You have an appointment there, you will be told which people are necessary for the on-site appointment (if you call there beforehand), you have one-off costs and everything is arranged as you want.
With this power of attorney, I (we) could always be able to act, for all hospital stays, short-term care, etc. I have already used it very often.
This power of attorney also turned out to be a huge relief for us when canceling or re-ordering energy, rental items, insurance, account items, etc.

Again greetings from Christine

Member since February 18, 2007

Hello daughter38,

I still found a page on the net with a formulation aid for the contradiction. You can use it if necessary: Contradiction care level & amp; hl = de & amp; ct = clnk & amp; cd = 1 & amp; gl = de

Greetings from Christine

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